Hi there and welcome to Five Star Disability!
I have a unique condition, a disorder, syndrome that is abbreviated as CAPOS, to learn more about the specific nuances, please check out
And I am still learning about this fascinating complexion! Oh my!
While I do know about CAPOS Episodes, I experience them almost daily, I didn’t have a name associated with them before.
If I overexert myself, or more commonly, if I fall down too often, or bang my head, or give myself some sort of shock or whatnot; I usually end up having a CAPOS episode.
In short, as it is too long to spell out, I become lethargic, and my ataxia issues raise their collective heads: I experience a variety of outcomes, but usually they tend to focus on:
- Poor coordination
- Unsteady walk and a tendency to stumble
- Difficulty with fine motor tasks, such as eating, writing
- Change in speech
- Involuntary back-and-forth eye movements (nystagmus)
- Difficulty swallowing, coughing
- Perchance to have mumbled thoughts
These might pop up, as mentioned, after a fall, and I need to either sit or stand for a while.
Watching TV overlong, or this iPad, can also cause my eyes to jump around and not seeing things. When I start blogging, I can see my fingers as they type, yet after a while, the fingers vanish, replaced by a black cloud. Weird eh?
If I’ve been sitting, in CJ-3 perhaps, for a long period of time, I tend to want to stand up for a while. To get circulation flowing again!
And, yes, I should get physiotherapy, but I get enough exercise going up and down stairs in my house! And I can’t afford the fees anyways!
Thank you for reading, liking, sharing, et al…