CAPOS episode

Hi there and welcome to Five Star Disability!

I have a unique condition, a disorder, syndrome that is abbreviated as CAPOS, to learn more about the specific nuances, please check out

And I am still learning about this fascinating complexion! Oh my!

While I do know about CAPOS Episodes, I experience them almost daily, I didn’t have a name associated with them before.

If I overexert myself, or more commonly, if I fall down too often, or bang my head, or give myself some sort of shock or whatnot; I usually end up having a CAPOS episode.

In short, as it is too long to spell out, I become lethargic, and my ataxia issues raise their collective heads: I experience a variety of outcomes, but usually they tend to focus on:

  • Poor coordination
  • Unsteady walk and a tendency to stumble
  • Difficulty with fine motor tasks, such as eating, writing
  • Change in speech
  • Involuntary back-and-forth eye movements (nystagmus)
  • Difficulty swallowing, coughing
  • Perchance to have mumbled thoughts

These might pop up, as mentioned, after a fall, and I need to either sit or stand for a while.

Watching TV overlong, or this iPad, can also cause my eyes to jump around and not seeing things. When I start blogging, I can see my fingers as they type, yet after a while, the fingers vanish, replaced by a black cloud. Weird eh?

If I’ve been sitting, in CJ-3 perhaps, for a long period of time, I tend to want to stand up for a while. To get circulation flowing again!

And, yes, I should get physiotherapy, but I get enough exercise going up and down stairs in my house! And I can’t afford the fees anyways!

Thank you for reading, liking, sharing, et al…

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s