So, what exactly is CAPOS?

This is the Medical definition:

Cerebellar ataxia – Areflexia – Pes cavus – Optic atrophy – Sensorineural hearing loss (CAPOS syndrome) is a rare autosomal dominant neurological disorder characterized by early onset cerebellar ataxia, associated with areflexia, progressive optic atrophy, sensorineural deafness, a pes cavus deformity, and abnormal eye movements.

Now, in English that means:

Cerebellar Ataxia: coordination issues, walking, sitting, standing, swallowing, and so forth…

Areflexia: I have zero reflexes.

Pes Cavus: I have high arch in each of my feet.

Optic atrophy: vision issues, I am legally blind.

Sensorineural deafness: my hearing loss is due to neural damage, and it is unfixable.

That is CAPOS.

There are a few variations, some have no Pes Cavus, others are different in other ways.

I am always looking for others with CAPOS, so if you read this and have the disorder, please do contact me!