The voice of the ataxian

Hey volks!  howr you doing?

I gud and at quickly attempt to do a blog at library.

Part of ataxia is the loss of vocal cords right?  Yes, it is noted that it is a major feature of ataxia.

When I was growing up, I was quite articulated and pretty much loquacious.  I was talkative. Plus I loved, still do, to read and pick up new words and phrases.

When I my hearing started to deteriorate, and I started picking up ASL, I was around 21 or 22 when I started to be more skilled with ASL.  I used my voice at home, with family.

Now, 28 years later, I am much skilled ASL, I yet my voice has gone to hell in a handbasket.

Over the last 4 years I have noticed words with two or three syllables have become unattainable.  Most notably are:

– Chocolate

– Tablet

– Psalms

– Furniture

– others to come later.

My thought processes and my voice are not always on the same page.  What I meant to say is not what actually comes out.  The same happens, on occassion, when I signing.

It is part of my neurological ataxia.  And, sadly, it will get furse.

Bear with me, patience please, if you meet me and I spray you with nonsense blather.  I am trying hard to tell you something!

Thank you for listening!

Please share if you can, like if you must, consider donating to http://www.gofundme.com/capos if you wish.

 

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