What’s the best advice you’d give to someone younger than you?
An interesting topic:
My son CAPOS, same as me, but his symptoms are milder than mine.
I’ve told him, in terms of ataxia, he can do things that I couldn’t do when I was his age. And that he should not be using ataxia as an excuse to avoid activities.
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To other non-disabled youth I have a plethora of advice I’d give, which depend fully on their disposition:
- To the airheads who stand and stare unblinkingly at me while I attempt to maneuver past them using my power chair, I’d advise them to: “Move!”
- To young people who go everywhere, it seems, with a device two inches from their face, including those who are crossing extremely busy streets, I’d advise to: “Put your phone away!” “Watch where you are going!” or simply “For fucks sake!”
- To young people who support or work with individuals who are disabled, I met two of them last week, I would give “Thanks” and advise them to “Keep up the good work.” As I did last week, the DeafBlind person had two PSW (personal support workers) whom I’ve never met before. I took the time to chat with the DeafBlind person, then thanked the PSWs who might not get many thanks, especially from the DeafBlind person. Sometimes even a stranger can boost morale.
Thank you for reading!

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