Good morning everyone!

I hope you are well … on your way …

Do you know what that word above means? I often spell it as Nastygums! Winks…

It is a vision condition in which the eyes make repetitive, uncontrolled movements. These movements often result in reduced vision and depth perception and can affect balance and coordination. These involuntary eye movements can occur from side to side, up and down, or in a circular pattern. That is a direct quote from Google; say thank you!

Well, notice there is a reference to balance and coordination in that generalized defination? This does not usually imply that the person with nystagmus has ataxia, in fact, this condition can affect a person for a few hours, a day, or for a short duration. But for me, it is a neverending cycle!

Everything I look at is jumping and wiggling… I know something is stationary, but my eyes might play a trick and make it look like it is moving!

This is very taxing to my ability to see!

I’ve also experiencing more missing things issues:

  • My dog zipping out of open front door,
  • watching captions on TV and not following it fully,
  • walking smack into glass windows, barriers,
  • missing some ASL conversations because unable to follow…

That last comment, I am considering to use tracking while watching ASL, still working on it!

Nystagmus is much more troublesome for me and my ataxia! Both of these drain me… And let us not forget my other common frustration…

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The big five parts of capos

Cerebellar ataxia


Pes cavus

Optic atrophy

Sensorineural hearing loss


Do you have comments or questions? I want to read them!


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