Writings about Ataxia, being DeafBlind, family life. The best life can offer!


Front Row

Hey folks, how are you all doing?

I am wondering about something…

Why is it that Deaf-Blind people automatically get front row seats?

Even if they are unable to see, clearly, the action or communication.

Recently, I’ve attended two performances: one of Prince Hamlet with Deaf actress Jodi Birley, and a workshop with World Federation of the Deaf president Colin Allen.  Both were obviously in ASL, and I did have Deaf Interpreters.

But my issue is:

Why were the Deaf-Blind sitting in the front row?

I could barely see the performance, and could not see the DIs.  The workshop was an amazing message, a strong message!  Yet, for me, I could not fully grasp the magnitude or power of Colin’s workshop.

In both cases it was all about lighting; Prince Hamlet was dark, dark!  The workshop had bright powerpoint projections.

Planning is key to improving!

I would have liked to sit, at a more accessible place, not at the front, but at the side or back, with two Deaf Interpreters.  Had I been given this opportunity, I would have grabbed it!

So, I ask you: do you feel pressured to take the front row or to sit, with support, somewhere else?

Thank you for listening!

 

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About the author

Craig MacLean is DeafBlind with ataxia, a rare condition called CAPOS. He & his wife of 22 years have two sons, the oldest of which has CAPOS as well.

Craig uses American Sign Language to communicate. He is an avid writer, friend, Hot Wheel collector and intervenor advocate.

Craig sits on many committees, boards and associations as a DeafBlind rep. He graduated university with a BA in psychology in 2000.