Writings about Ataxia, being DeafBlind, family life. The best life can offer!


I am Deaf!

Hey folks!

I am Deaf right!

I could not hear a siren or any loud noise unless my left ear is turned toward the sound!

I’ve told you about this in Did you hear the fire truck post.

Many times, and I often run out of fingers counting, I have been approached by people talking to me about this or that.  Or I’m trying to get my point across.

So, here is a play by play…

Me: Giving them a coupon (2 for 1)… gesturing 3.

Cash: Blah blah blah

M: gesturing, Deaf

C: Blah blah blah.

M: Coffee (voice is croaky)

C: inputs to menu… one combo with Root Beer, one combo with coffee… $12.38

M; holding three fingers up…

C: inputs three combos, total $28.11

M: What?  How did that three combos cost $28 bucks? (Voice is very croaky, I must sound like George Burns impersonating Donald Duck with a serious sinus infection!)  I want THREE!  It should not cost that must!

C: Inputs… two combos, and one hamburger…total $18.94.

M: Thank you!  That is better!

Oh, that is a recent event… But I am also talking about people who continue to blah blah blah at me, after I have told them several times: I am Deaf!  And my White cane is obvious.  So, they are not making the connection… Get with the program!  I am Deaf-Blind.  Lipreading is beyond my abilities!

And, yes, I do have cards ready!

I will share with you a fun story that happened to me in Florence, Italy almost 18 years ago.

Remember to share, like and support!

(PS, I have closed my GoFundMe account… so, by Support, I mean, click on the ads… that is how I get paid!  I just made my first $2.50 a month ago, after publishing for the past 18 months!)

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About the author

Craig MacLean is DeafBlind with ataxia, a rare condition called CAPOS. He & his wife of 22 years have two sons, the oldest of which has CAPOS as well.

Craig uses American Sign Language to communicate. He is an avid writer, friend, Hot Wheel collector and intervenor advocate.

Craig sits on many committees, boards and associations as a DeafBlind rep. He graduated university with a BA in psychology in 2000.