Writings about Ataxia, being DeafBlind, family life. The best life can offer!


Jangly-ness

On a recent Saturday, I was feeling pretty good, reinvigorated actually.

I had a whole list of things I needed to accomplish that day.

Then, I had to go pickup my dog so the wife could do some shopping.

Driving CJ-3, my power chair, in my usual manner, downshifting when crowded, zooming when no one stood in my way… typical.

But, instead of taking the usual sidewalk route, I took a detour.

I happened to know that the sidewalk I was currently cruising on had some pretty high “speed bumps” coming up. I had the misfortune of clattering my teeth a few times when I hit those bumps!

So, I took a detour, and then it happened! I shot off the curb, and toppled over! There was lots of shrubbery crowding the sidewalk!

Having been here before, I actually said “Okay, here we go again!”, I was able to keep the chair on my back, while protecting the joystick. I wiggled out, then flipped the chair back upright with ease!

No one was close enough to help.

Like during my youth, my knees were scraped, but not bloodily bad.

I felt alright!

I went the last 200 feet, took control of the dog and motored home.

Other than the scraped knees, nothing was out of order… until…

About an hour later, my nerves were jangling, I was bouncing off walls more than normal, I couldn’t hold a candle, I was dropping things and my vision was quite unfocused!

I attributed the jangly-ness to nerves after the accident, which is typical for me.

The rest of the day I hardly accomplished anything…

I am interested to hear your thoughts?

Is this an ataxia issue, a CAPOS issue?

Thanks all!

Response

  1. I enjoy reading most of your blogs, especially this one. I think it’s an ataxia issue . I have ataxia and don’t know anything about CAPOS but that’s not the reason. When I get in a minhap or a fall my nerves take some time to register what has happened then respond somewhat like yours did. The best we can do is sit in a nice comfy chair, have a cup of coffee or tea and maybe some cookies. Then I read a good book. Your nerves need more time than other peoples to calm back down. We are special people. on

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About the author

Craig MacLean is DeafBlind with ataxia, a rare condition called CAPOS. He & his wife of 22 years have two sons, the oldest of which has CAPOS as well.

Craig uses American Sign Language to communicate. He is an avid writer, friend, Hot Wheel collector and intervenor advocate.

Craig sits on many committees, boards and associations as a DeafBlind rep. He graduated university with a BA in psychology in 2000.