Writings about Ataxia, being DeafBlind, family life. The best life can offer!


Let’s start this week with a blog!

Hey everyone!

I am going to start this… yeah you read the title!

Anyways; let’s be serious here…

Is it my age and posture that is causing many body issues, or is it ataxia?

Like for example: I have joint pain in my legs, knees and hips.  Could that be from my inactivity, or from the neurons in my brain.  Is it me?  Or is it ataxia?

I recently saw a Clinical Swallow specialist, and she came up with two possibilities: one Acid Reflux, or Ataxia.  I filled out a Reflux Symptoms Index and my tallied score was 31 out of 45.  She said I may have acid reflux… so I went to see my doctor, and she said my blood pressure is mildly high.  The Doctor ordered a bunch of tests.

Tut, again, is this mild hypertension due to my age or ataxia?

Yesterday I chaired a meeting that was long and draining.  I was watching the interpreters for over three hours.  My eyes did a few flutters near the end of the meeting.  Was it fatigue or ataxia?  Remember my eyes are often over-stressed… I took off my glasses.

I really am a puzzle!  Is it age and inactivity?  Or is it ataxia?  To see, this week I will be trying to do at least 30 minutes a day of physical exercise.  Let’s see..

And, I have plenty of blog topics this week!

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From the blog

About the author

Craig MacLean is DeafBlind with ataxia, a rare condition called CAPOS. He & his wife of 22 years have two sons, the oldest of which has CAPOS as well.

Craig uses American Sign Language to communicate. He is an avid writer, friend, Hot Wheel collector and intervenor advocate.

Craig sits on many committees, boards and associations as a DeafBlind rep. He graduated university with a BA in psychology in 2000.