Writings about Ataxia, being DeafBlind, family life. The best life can offer!


Ataxia Lexicon

Hey folks!

I want to use this blog, today, to elaborate about myself, and my ataxia.

Some days, I am fine and can go throughout the entire day without a jerk, loss of balance or dropped thing. Then, the next day, I nearly fall over several times within 5 minutes, drop almost every thing that I pick up, and bang my head into every surface imaginable!

Those days of Non-Ataxia and Over-Ataxia are getting rarely… And some days Ihave no idea how to cope!

I feel lost!

And then, there is the describing or pinpointing the ataxia actions, reactions.

Should I create a lexicon of terms?

Pseudo-fall would me, a false fall, or near fall.

Roundhouse fall would mean a fall due to going back and forth too quickly.

Etc…

Is there a list?

Remember, ataxia is not just body coordination; it also implies to mental abilities, eye gaze and breathing!

I am not using the term Brain Fart in any way or form in connection to ataxia!

What are your thoughts?

Craig!

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About the author

Craig MacLean is DeafBlind with ataxia, a rare condition called CAPOS. He & his wife of 22 years have two sons, the oldest of which has CAPOS as well.

Craig uses American Sign Language to communicate. He is an avid writer, friend, Hot Wheel collector and intervenor advocate.

Craig sits on many committees, boards and associations as a DeafBlind rep. He graduated university with a BA in psychology in 2000.