Writings about Ataxia, being DeafBlind, family life. The best life can offer!


Don’t Rock the Boat

Today’s short blog is about how I am feeling today.

If I am standing, I am almost sure I am going to fall over if someone bumped me.

As I am sitting, I am reminded of the time when I was sitting on a ferry as it went over huge waves during a rough crossing from Tsawwassen to Swartz Bay (Heading to Victoria BC).  That is what I feel like on a regular basis, sitting or standing!

And, whats more, when I close my eyes, as some of you may do to gain stability, my eyes continue to jump and saccade for no apparent reason!

A saccade is a rapid eye moveent from one point to the next, and back.  For example: if you are reading this word now, then look to the distraction on your left, your eyes will focus on now, then unfocus, then shift to the distraction, then focus.  This all happens very quickly, you do not notice it.

My eyes, when at rest, are still jumpy!

Oh that is my life!  And it is gonna be a great one!

Please don’t rock my boat, I might fall and seriously injure myself.

Remember to Share and like, and if you want, support me at http://www.gofundme.com/capos.

Thank you!

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About the author

Craig MacLean is DeafBlind with ataxia, a rare condition called CAPOS. He & his wife of 22 years have two sons, the oldest of which has CAPOS as well.

Craig uses American Sign Language to communicate. He is an avid writer, friend, Hot Wheel collector and intervenor advocate.

Craig sits on many committees, boards and associations as a DeafBlind rep. He graduated university with a BA in psychology in 2000.