I am excited about a lot of things: mainly that spring is coming! Yesterday I was out walking and took off my coat for a spell! The sun was very warm!
But in connection to CAPOS, I have been informed by my new ataxia specialist at Vancouver General Hospital that she is aware of 3 other people with CAPOS in the Lower Mainland (which is to say Metro Vancouver)!
Plus, my wife, who works as a deafblind intervenor, was told by the school board deafblind specialist that there is a family with CAPOS somewhere in the Lower Mainland!
That’s four CAPOS families!
What’s more? I met an old friend recently, I chatted about CAPOS, and she mentioned to me that she has a friend with CAPOS!
That is five people or families with CAPOS in the Lower Mainland. A freaking hotbed of people with CAPOS!
My ataxia doctor did mention the humbling fact that there are a grand total of 30 cases of confirmed CAPOS in the world! And 6 of them live in the Lower Mainland! What are the odds! I am beyond belief!
I hope that the families will contact me! CAPOS Individuals, you are not alone!