Writings about Ataxia, being DeafBlind, family life. The best life can offer!


New home

Hello, just a quick post to explain my lack of posts, we recently moved into our new home!  It is a three floor townhouse with two bedrooms and a huge basement.  My family really like our new home.  It is taking a while to get things set up!  Which is typical of moving, right?!

Anyways, the other night my older son said something to me that made me stop for a second… He said “I wish Daddy could hear…”  My wife interpreted this.  It took me a second to grasp what he said: “I wish…”, I replied in ASL, my wife did help a bit, “I don’t wish I could hear, I am used to being deaf, I sign and so will you.”

Now, truth, I am happy that I cannot hear a lot of useless arguing, name calling and insults.  I think the most beautiful sound is the chirping I hear when my children are in the room, and when they are close to me.  That is all the I can distinguish, its like an untuned radio, if you know what that is raise your hand.  What they are saying, is beyond my ability, I can’t discern anything.

I am so used to being Deaf-Blind with severe ataxia, that if someone offered a magic pill to cure me and make me “normal”, I would take it and crush it.  I would not change anything about me.

Besides, what exactly is “normal” or “typical”?  What I do is my normal, what you do is your typical thing.  Everyone’s normal in their own spotlight.

What I would wish for is great physique with an incredible set of abs!  Oh that I could wish for!  Oh, I better get to the gym!

(Please remember to like and share!)

 

 

 

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About the author

Craig MacLean is DeafBlind with ataxia, a rare condition called CAPOS. He & his wife of 22 years have two sons, the oldest of which has CAPOS as well.

Craig uses American Sign Language to communicate. He is an avid writer, friend, Hot Wheel collector and intervenor advocate.

Craig sits on many committees, boards and associations as a DeafBlind rep. He graduated university with a BA in psychology in 2000.