Writings about Ataxia, being DeafBlind, family life. The best life can offer!


Did you know…

I’ve commented about my ability to have gainful employment a few times in the past.

As a DeafBlind person with ataxia having a job would be a miracle.

By “job” I mean that:
– I’d have tasks that need to be accomplished,
– I’d travel to a place of work,
– I’d earn $11.83 per hour, okay, make that $14.02,
– I’d have keys to the company time-share condo in Waikiki,
– I’d have a company email!

I have a few minor gigs, jobs that I do for a College, 4 hours a year, and Survey work… nothing to laugh about!

Recently, I forgot about my ataxia and thought: “Hey, maybe I could get a job at a candy factory.”

The job description was very simple: Wrap individual Chocolates, no experience needed.

I was actually tempted to step into that candy store, approach the manager, proclaiming “You’ve found your Candy Wrapper!”
Heck, I would have done exactly that had I not dropped my cell phone seconds after taking a photo of the job posting; which caused me to sway dangerously, almost falling, as I bent down to pick up the device; then misjudging how close I was to the door, my head cracked noisily, ouch; I pulled, then pushed, the door open with the strength of a rhino, uncalled for right; next, I almost stumbled into a display of flavoured suckers; I saw chocolate peanut butter cups, getting three, dropping two onto the floor, so I repeated the above…

It was after the third thing I dropped, a bag of candy rope, when I decided…

Oh fuck this shit…

I can’t do even a Candy Wrapper job!

I bought 12 chocolate peanut butter cups and left the store, feeling dejected. I ate 2, felt a lot better!

I closed that door smoothly, both figuratively and literally!

Thanks for reading!

Y’all take care!

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About the author

Craig MacLean is DeafBlind with ataxia, a rare condition called CAPOS. He & his wife of 22 years have two sons, the oldest of which has CAPOS as well.

Craig uses American Sign Language to communicate. He is an avid writer, friend, Hot Wheel collector and intervenor advocate.

Craig sits on many committees, boards and associations as a DeafBlind rep. He graduated university with a BA in psychology in 2000.