Writings about Ataxia, being DeafBlind, family life. The best life can offer!


Cultures, a comparison

The past three days, I have been at a retreat for Blind and Partially Sighted folks.

I am the only DeafBlind, ASL-user here. I communicate with others using text.

Let me tell you the various differences I have seen in terms of Deaf Vs Blind cultures.

  • Blind folks will talk to others from any position, place or room. A group of blind friends are sitting around a table, one could be facing the opposite direction, another could be sitting on the floor, inches away from a someone’s butt, another person could be in another room, lounging on the sofa.
  • Deaf folks rely on eye contact, so typically they chat within the same room, or within visual range.
  • Deaf folks can carry on an in-depth conversation through a closed window.
  • Blind folks would need to open that window to have the same level of convo.
  • Blind folks tend to call out, once or twice, and that’s it. The person announcing assumes everyone heard “Dinner is ready!”
  • Deaf folks will also call out, flashing lights or bang the table, hands waving, “Dinner is Ready!”
  • Blind folks probably will say “excuse me, I farted” or something like that.
  • Deaf folks won’t bother, unless it is a stinky one!
  • Blind folks move around very slowly, “watching” where they are going, with hands outstretched.
  • Deaf folks move around without much issue.
  • Deaf folks are conscious if doors are open.
  • Blind folks can forget to close doors.
  • Deaf folks tend to have lights on.
  • Blind folks don’t generally need lights on, might not be aware they are on, might leave them on for days or years.
  • Deaf folks can drive.
  • Blind folks, obviously, are unable to drive. The insurance premiums would be astoundingly high if they were permitted to operate motor vehicles!
  • Blind folks tend to have small areas of personal space. Squeezing through a group of chatting blind folks and touching breasts or other body bumps, is perfectly normal.
  • Deaf folks tend to move out of the way if someone needs to pass among them, no awkward touching permitted.
  • Deaf folks tend to make sure windows are covered before changing clothes or commencing sexual activity.
  • Blind folks may or may not check if the windows are curtained before showering or fornicating.
  • Blind folks will knock on doors, calling out “Are you there? I need to pee.”
  • Deaf folks would either flick the lights while dancing on the spot, or find a different place to urinate.
  • And finally, Deaf folks are much more animated, obviously; sign language, body language, facial expressions and so forth. A simple “what…” can translate into four spoken sentences.
  • Blind folks tend to offer very little in terms of facial expressions or body language. Being blind, they can’t see if I have a nonchalant expression, a puzzled one, or if I am winking drunkenly at them, not that I have ever done such a thing!

Those are the differences I can tell you about right now, I challenge you to add more if you can think of any!

Until we meet again, good day!

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About the author

Craig MacLean is DeafBlind with ataxia, a rare condition called CAPOS. He & his wife of 22 years have two sons, the oldest of which has CAPOS as well.

Craig uses American Sign Language to communicate. He is an avid writer, friend, Hot Wheel collector and intervenor advocate.

Craig sits on many committees, boards and associations as a DeafBlind rep. He graduated university with a BA in psychology in 2000.