Writings about Ataxia, being DeafBlind, family life. The best life can offer!


Getting mad

You know something?

Ataxia sucks!

It is a pain in the ass!

Let me tell you about it!

On a recent Wednesday, I had a botox injection appointment, then I went to the gym in the late afternoon.

Going to the gym, lifting a ton of weight and exercising all muscles really makes me feel accomplished and relaxed!

The Wednesday in question, having had a great day, I was energized as I motored home!

But, I had to pee so badly!

I got CJ-3 in the door, drove it inside the house, turned it off, and rushed upstairs!

I managed to get to the bathroom without losing any urine! Hurray!

I dropped my pants and underwear, then… lost my balance, and fell backwards into the tub!

I didn’t lose any urine then either!

The house shook, my kid came to check, but I had already hauled myself out of the tub and onto the proper throne!

I laughed it off, falling to the tub! Nothing broke right!

Then, the next day the wife and I went to visit Mum at the ICU; I had decided to use my Walker instead of CJ-3. I was thinking that it would be nice to walk with my wife…

Yet, in the span of five minutes, I fell spectacularly twice!

First time my foot hit the wheel, and got stuck, I toppled over, uttering profanities, hitting the walker with a fist.

I was mad.

My wife helped me up, offered to get CJ-3.

I sat on a low wall as I waited, musing about Mum.

When the chair arrived, I stood up, quicker than I should have, and immediately toppled over again!

This time I was very mad, and pummelled my knees, swearing at myself.

My wife rushed over, helped me up, calmed me down, got me in the chair.

I calmed down, but I still haven’t apologized to myself.

I hate when I fall!

I think I made it up to myself a few days ago when I finished a massive two hour workout!

Ataxia still sucks!

What do you, fellow ataxians, do when you get mad at yourself?

Response

  1. When I get mad at myself I say all kinds of profanities mostly just BITCH or son of a bnitch. A lot of times I laugh at myself . Why do you get botox injections? What are they supposed to do? Do they help?

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About the author

Craig MacLean is DeafBlind with ataxia, a rare condition called CAPOS. He & his wife of 22 years have two sons, the oldest of which has CAPOS as well.

Craig uses American Sign Language to communicate. He is an avid writer, friend, Hot Wheel collector and intervenor advocate.

Craig sits on many committees, boards and associations as a DeafBlind rep. He graduated university with a BA in psychology in 2000.