Writings about Ataxia, being DeafBlind, family life. The best life can offer!


DeafBlind moment #3801

Hello readers!

In November of 2024 I had an interesting experience, and I want to share it with you. It’s a three-part story, hang in there…

But first some backstory:

  • In mid 1990s, I volunteered at a regular summer day camp,
  • I communicated, at the time, with these kids, verbally, I had a hard time hearing them,
  • I was was more hard of hearing back then, could see pretty good, but now, I am DeafBlind…
  • One kid really connected to me, he was shy and introvert

Okay, so that should be enough info for this blog…

So, that day in November, I had an intervenor, shopping at Costco was the plan.

I had a tight schedule, a list, and a shopping cart…

I had just arrived, chatting with the intervenor, strolling towards the butchery, chatting with the intervenor, minding my own business…

“Craig! Hey Craig!” someone is calling you, said my intervenor.

So I stopped right in the middle of the aisle. A large man, with long curly hair & a beard, both the same shade of orange/red, stands before me.

“Hi Craig,” he says.

“Hi there! Who are you?” I ask in greeting.

“Oh, I am Scott…”

It took me a second, I had to look at his face again, to recognize the shy boy that latched himself on to me many moons ago.

“Oh, Hi Scott! How are you…”… We chatted for 15 minutes, catching up on family, children, etc, in the middle of Costco!

Scott did not sign, ASL he knows not, my intervenor facilitated the communication.

This was really awesome and happy that I got to meet up with an adult Scott, I haven’t seen him since 2003. We both felt empowered, well I did, and positive with that meetup!

This situation was facilitated by an intervenor, in my next blog, I’ll share a different experince.

Stay tuned…

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About the author

Craig MacLean is DeafBlind with ataxia, a rare condition called CAPOS. He & his wife of 22 years have two sons, the oldest of which has CAPOS as well.

Craig uses American Sign Language to communicate. He is an avid writer, friend, Hot Wheel collector and intervenor advocate.

Craig sits on many committees, boards and associations as a DeafBlind rep. He graduated university with a BA in psychology in 2000.