Writings about Ataxia, being DeafBlind, family life. The best life can offer!


Neurology

Hi folks:

Recently I got jabbed with Botox, happens every three months.

The doctor is now my main neurologist. This fella has at least four patients with CAPOS, he is more knowledgeable.
In late June, I had a brain MRI, to determine cerebellar atrophy, damage to my cerebrum. The MRI went smoothly, I actually fell asleep in that donut!

A month later, I saw the doctor, and my wife came along too!

After six pricks, Dr. K pulled up my MRI results, including a couple of images!

Proof, at last! I have a brain!

Aside from that astounding factoid, Dr. K also mentioned that there is no cerebellar atrophy!

My brain is within normal limits.

There is swelling somewhere, where exactly is not known.

Because the cerebrum is functioning within normal parameters, we surmised the synapses are misfiring or something.

I guess more tests are needed!

Dr. K also mentioned that I should be walking more often, as I opted to use a walker to see him. Usually I motor to his clinic using my power chair.

That being said, I also have joined the gym again!

So, That appointment had a lot of positives!

Thank you for reading!

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About the author

Craig MacLean is DeafBlind with ataxia, a rare condition called CAPOS. He & his wife of 22 years have two sons, the oldest of which has CAPOS as well.

Craig uses American Sign Language to communicate. He is an avid writer, friend, Hot Wheel collector and intervenor advocate.

Craig sits on many committees, boards and associations as a DeafBlind rep. He graduated university with a BA in psychology in 2000.