Writings about Ataxia, being DeafBlind, family life. The best life can offer!


As I am DeafBlind, I use intervenors a lot, they provide visual and auditory information and guiding.

Yet, I am unique, I also have ataxia. I have a high potential of falling, nearly falling or joshing this way or that.

Sometimes I use the intervenor for guiding, I put my hand on their shoulder, sometimes not.

Let’s get one thing straight, most of the time, when I use intervenors, I do not use a walker or power wheelchair. Intervenors have vehicles, so much easier.

So, in my case, when an intervenor is guiding me, they also support my walking.

On a recent Saturday, I was at a massive yard sale, with much uneven ground. The intervenor was close to me to be sure I was not about to fall over, if I stumbled, they would put a shoulder out to steady me, or a hand.

I felt confident, and did not fall down.

When I had my last visit with a dear DeafBlind friend on the last Monday of April, an emotional visit, the intervenor was able to guide me with consideration and understanding.

It was an emotional visit because that person died two hours after I left her. She was 92, she had a fall, broke her arm, she had not eaten. It was her time.

The intervenor was able to support my ataxic movements and my emotional stupor.

So, you see, Intervenors are very much important to DeafBlind persons, for each unique person.

Thank you for reading.

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About the author

Craig MacLean is DeafBlind with ataxia, a rare condition called CAPOS. He & his wife of 22 years have two sons, the oldest of which has CAPOS as well.

Craig uses American Sign Language to communicate. He is an avid writer, friend, Hot Wheel collector and intervenor advocate.

Craig sits on many committees, boards and associations as a DeafBlind rep. He graduated university with a BA in psychology in 2000.