Writings about Ataxia, being DeafBlind, family life. The best life can offer!


The lady looked…

Hi there everyone!

Just a little blog, not too long, not too short, but dealing with an important topic nonetheless; ableism.

And I started this blog two months ago. It’s almost completely done! Why didn’t I publish? Who knows!

Ableism can mean a handful of things, basically it occurs when non-disabled people act superior to those who are disabled. Yah, that’s it…

But, importantly, I should clarify; that is my definition, and just a fragment of it. Every person with disabilities has their own mantra their own understanding of the issues. Ableism is individualized as eye-colour, fingerprints, coffee preferences.

However, ableism is not on trial here… the comical situation that unfolded months ago is…

You all know I use my power chair often, for outings, shopping, appointments, et al…

Maybe you don’t know, I will often get out of the CJ-3, using my wobbly legs to get to a better seat or stall or examine something on a high shelf.

This “change of pace” is usually greeted with astonishment, followed almost instantaneously with acceptance, or, if I am keeling over like a rag doll picking up a brick, with helping hands!

There are often, I am banking on it, gasps, followed by verbal communications: “Are you okay?” “Hey you!” “Did you want that jug of milk?” “Are you related to Stephen Hawkins?” et al… However, I usually don’t even respond, I’m DeafBlind, and cannot hear, nor can I see a mouth forming words.

It is the expressions, and body language, that really draw my attention.

And so… There was an old lady, greyish hair, wearing horn-rimmed glasses circa 1956, colourful cardigan; who stood mere feet away from me, mouth open, arms akimbo. The expression was funny, and obvious; she was obviously berating me for my apparent falsehood as I sat down in CJ-3, having walked from the wall of merchandise to CJ-3, the aisle was cramped and overcrowded!

That look, hands of hip, was priceless! It said: “How dare you use that wheelchair when you can walk just fine!”

Or perhaps she was convoying: “How dare you, you are a grown man, those Hot Wheels are for boys! Act your <bleep> age!”

Whatever she meant, I didn’t stick around to clarify or defend myself; I gave her a goofy grin as I buckled my seatbelt, then a wave as I rolled off to another part of the store.

I didn’t need to explain myself, not to a lady stuck in the 50s who probably doesn’t have a social media account and probably has rotary dial phone.

Anyways, thank you for reading, liking, donating!

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About the author

Craig MacLean is DeafBlind with ataxia, a rare condition called CAPOS. He & his wife of 22 years have two sons, the oldest of which has CAPOS as well.

Craig uses American Sign Language to communicate. He is an avid writer, friend, Hot Wheel collector and intervenor advocate.

Craig sits on many committees, boards and associations as a DeafBlind rep. He graduated university with a BA in psychology in 2000.