Writings about Ataxia, being DeafBlind, family life. The best life can offer!


Nerves

Hey friends!

I’d like to tell you about something…

My legs constantly hurt, mostly the mucles, and sometimes the ankle, maybe my hips.

Yesterday I kept “feeling” things on my right foot. Thought I had a hair stuck there?

Also yesterday, same as other days, I’ve felt things like bugs fly around my head, like I stuck my head in a honey jar and ten thousand flies are flying around my head!

The hairs on my ears and eyebrows tend to drive me batty!

It all boils down to Nerves. With CAPOS, my nerves are overcharging, overworking and overdoing the simpliest things.

So, when someone say: “You’re getting on my nerves!” I do know what that implies!

So far the record is two days of blogs! I love my new set up!

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About the author

Craig MacLean is DeafBlind with ataxia, a rare condition called CAPOS. He & his wife of 22 years have two sons, the oldest of which has CAPOS as well.

Craig uses American Sign Language to communicate. He is an avid writer, friend, Hot Wheel collector and intervenor advocate.

Craig sits on many committees, boards and associations as a DeafBlind rep. He graduated university with a BA in psychology in 2000.