Writings about Ataxia, being DeafBlind, family life. The best life can offer!


What’s up with my walking?

A closer look at the way I walk, which is kind of weird.Image result for ataxia images

I rarely walk straight for more than a few feet.  Even with my walker, I still walk pretty “drunkenly!”

This is based on two, or three things.  Let’s examine.

If the surface is flat and uncluttered, I walk pretty straight-ish.

But, if there is something on the floor, and I don’t see it, and I step on it, I lose some balance!  Next, if I do see the object on the floor and attempt to step over it, whether it is a sleeping dog, an empty bottle of wine, backpacks, pumpkins all in a row, my balance is off and I usually do fall.  Its called overstepping, many people can do it with ease.  I cannot.

Stoppages: When I am walking and suddenly stop, I either forgot something in the other room, or someone tapped me on my shoulder.  If this happens, and it does, I usually walk into something.  Because I am unable to quickly stop at the drop of the hat.

Beach Walking: When the surface is not flat, such as sand, rocks, gravel, etc, I can still walk yet not as smoothly as others.  The pressure of my feet makes the sand move, and so there goes the balance.  I try to avoid those.  Have you tried to walk between sunbathers at a popular beach?  With towels and pails and kids building sand castles and holes, the non-ataxian could do it smoothly.  Yet, I am not so nimble!

Now we come to the point of this article…

Eye Gaze: It is my habit to walk with my head down, focusing on the pavement.  I’ve walked that way since my teens, I remember complenting on styles of pavement way back in in the mid 80s.  I remember talking to an O&M specialist from CNIB about this, as I was getting some support back then.  And I mentioned that I wanted to make sure I saw what I was walking on.  Back then, in then and in the community  I lived in, most of the roads did not have sidewalks… and there were ditches… I fell into some with big spiders … and there was a dead cat… and … oh sorry!  I ran off topic…

I do walk straighter when my eyes are downcast, I am not distracted.  Yet, when I do look up, while walking, and something my eye: a fancy car, a store, a child, or just anything, I would actually swerve in that direction!

Picture this: it is a nice afternoon, the sun is out, the air is warm.  I am walking to the bus stop, I am studying the pavement, as I usually do, and then I look up and see a gaggle of girls walking towards me on my left.  I’d probably swerve into them.  Oops!  Pardon me!  I probably scared the crap out of them!  Luckily I have my white can with me! Or I’d be in the slammer a lot more often that I have been.  Which is never!

Dropped Hat: When I do drop something and pick it up, I used to do it with flair and finesse.  Now I do it with falls and flops!  Yikes! I need to have a device to pick things up with!  But first I need to pick this thing up!

Okay, this article was started in mid November, I am finishing it now!

Like, share, follow and support!

Craig MacLean

 

 

Response

  1. I enjoyed your blog! There’s information and buts of humour thrown in. Love it.

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About the author

Craig MacLean is DeafBlind with ataxia, a rare condition called CAPOS. He & his wife of 22 years have two sons, the oldest of which has CAPOS as well.

Craig uses American Sign Language to communicate. He is an avid writer, friend, Hot Wheel collector and intervenor advocate.

Craig sits on many committees, boards and associations as a DeafBlind rep. He graduated university with a BA in psychology in 2000.