Writings about Ataxia, being DeafBlind, family life. The best life can offer!


Mystery Man!

Well, I’m not especially tall, and not even close to dark, but I am real mystery!

Let me tell you:

This morning, I was delinerating about the pain in my legs and feet.  My wife remarked, maybe I need pins or steel rods or something in my legs.

Then, later, my lovely wife mentioned my eyes look a bit weird, yellowish.  What’s up with that?

And, I can’t walk straight!   I did fall off the curb this morning!  Silly me!

Oh, and then there is the overly frustrating thing about me dropping every other thing is pick up!

And my recent blog on missing converstations!

Some doctor is getting rich off of me and my enigma!

I’m amazed, grateful, thankful, I am not on suicide watch at the psych ward at some local hospital!

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About the author

Craig MacLean is DeafBlind with ataxia, a rare condition called CAPOS. He & his wife of 22 years have two sons, the oldest of which has CAPOS as well.

Craig uses American Sign Language to communicate. He is an avid writer, friend, Hot Wheel collector and intervenor advocate.

Craig sits on many committees, boards and associations as a DeafBlind rep. He graduated university with a BA in psychology in 2000.