Writings about Ataxia, being DeafBlind, family life. The best life can offer!


Individualized Funding

I have heard of individualized funding before, and it seems far off and out of reach for me.

I have heard that persons with intellect disabilities (Downs Syndrome and FAS) can qualify quickly.

I have also heard that people with disabilities that affect hygiene and motor abilities are approved quickly too.

Oh, Individualized Funding means that a person, once qualified, is given a monthly cheque to hire and coordinate their own “staff”.  With people who are intellectually  disabled usually have someone else managing this monthly supplement.

Now, for me, I am hoping that I can use this funding to hire and manage my own intervenors.  WHY not?  I mean, my main disability focuses on communication, so therefore, it is on the same wavelength as hygienic care and support with learning etc.

What are your thoughts?

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About the author

Craig MacLean is DeafBlind with ataxia, a rare condition called CAPOS. He & his wife of 22 years have two sons, the oldest of which has CAPOS as well.

Craig uses American Sign Language to communicate. He is an avid writer, friend, Hot Wheel collector and intervenor advocate.

Craig sits on many committees, boards and associations as a DeafBlind rep. He graduated university with a BA in psychology in 2000.