Writings about Ataxia, being DeafBlind, family life. The best life can offer!


6 Things That Scare Me Most About My Hearing Loss

This is amazingly clear! Thank you! I hope I didn’t “steal” your work when I published it on my site. I am still learning the fun thing that is wordpress!

Shari Eberts's avatarLiving With Hearing Loss

Does your hearing loss ever scare you? Most of the time I accept my hearing loss, following communication best practices and self-advocacy tips to live my best life. I feel confident and capable. But sometimes I get afraid. Like when my hearing aids are on the fritz for a few days or I have a particularly challenging communication experience. Or when I have a close call crossing the street or trouble remembering something.

These are the times when I succumb to worry. What will my life be like as my hearing loss worsens? How will it impact my relationships? My health? My livelihood?

Living With Hearing Loss | A Hearing Loss Blog

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About the author

Craig MacLean is DeafBlind with ataxia, a rare condition called CAPOS. He & his wife of 22 years have two sons, the oldest of which has CAPOS as well.

Craig uses American Sign Language to communicate. He is an avid writer, friend, Hot Wheel collector and intervenor advocate.

Craig sits on many committees, boards and associations as a DeafBlind rep. He graduated university with a BA in psychology in 2000.