Writings about Ataxia, being DeafBlind, family life. The best life can offer!


Who is running the show?

Hi there,

My friend had two comments regarding my most recent blogs.  The first comment I analyzed in “The Deaf-Blind person”, now I will examine the other.

Who is running the show?  In other words, who is running the Deaf-Blind or deafblind agencies?

This is one reason why I moved to BC, a minor reason really.  In Ontario, almost all agencies that serve either Deaf-Blind or deafblind are run by those who are NOT Deaf-Blind.

By “Run by”, I mean all staff, managers, support workers are hearing sighted.  Even the GBC program of Intervenor Studies has hearing sighted decision makers, professors and teachers.  Yes, there are three Deaf-Blind instructors, one who teaches a full class solo.

Oh sure, agencies do hire Deaf-Blind, but their jobs are mostly cleaning and instructing.  No real decision making power.

I also notice that most boards that run agencies are overwhelmingly non Deaf-Blind!

But, not to discredit all these agencies avid support and great work ethic, and to avoid filling my inbox with hate mail.  These agencies have been working with Deaf-Blind for 25 or more years and have a whole lot of experience and knowledge!  They do know what they are doing!  I just wish that they would hire more Deaf-Blind managers and decision makers!

I am happy to be back in Vancouver, where all committees for Deaf-Blind are run by Deaf-Blind.  We are responsible for our future, we plan, work, sweat to make the live’s of Deaf-Blind better.

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About the author

Craig MacLean is DeafBlind with ataxia, a rare condition called CAPOS. He & his wife of 22 years have two sons, the oldest of which has CAPOS as well.

Craig uses American Sign Language to communicate. He is an avid writer, friend, Hot Wheel collector and intervenor advocate.

Craig sits on many committees, boards and associations as a DeafBlind rep. He graduated university with a BA in psychology in 2000.