Writings about Ataxia, being DeafBlind, family life. The best life can offer!


Blog up date…

Hi there readers,

I have made some changes to my blog, in hopes that I can get more people reading it.

When I started this blog, my goal was to search out other people with CAPOS – a fairly rarely genetic condition that has five parts: Cerebellar Ataxia, Areflexia, Pes Cavus, Optic Atrophy and Sensorineural Hearing Loss, thus a Five Star Disability.

Yet, I am not actively looking for other people, and more like to use this site as a way to express myself.

I would like to learn how to make money from this blog.  Ideas are welcome!

Thank you and good day!

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From the blog

About the author

Craig MacLean is DeafBlind with ataxia, a rare condition called CAPOS. He & his wife of 22 years have two sons, the oldest of which has CAPOS as well.

Craig uses American Sign Language to communicate. He is an avid writer, friend, Hot Wheel collector and intervenor advocate.

Craig sits on many committees, boards and associations as a DeafBlind rep. He graduated university with a BA in psychology in 2000.