Writings about Ataxia, being DeafBlind, family life. The best life can offer!


The man with many disabilities…

Hi folks,

I have three distinctive disabilities:

Blind, Deaf and Ataxia.

I also have three different, really four, identifiers.

I have always, over 20 years, had a white cane.  Of which I would use, earlier, occasionally, most for night travel.  Later, I would use it more often.  Now, it is an always tool, because my vision is fuzzy and seeing things is difficult.

I use ASL as my main mode of communication, have been since 1990.  I can still voice like a normal person, yet, what I consider loud, other people cannot understand.  So, if I don’t know someone, I will usually not voice.  I have scared the crap out of people, they think I can’t talk, when I call out to get someone’s attention!

Until 4 years ago, only those two were the main identifiers, but now, with my CAPOS, ataxia, I have a third.  My new walker, which I use more often, is a very visual identifier, people are more helpful (some!) and more respectful (others!).

The walker, “Whiteout” has opened a new perspective for me.  I see different reactions from people, from helpfulness to ignorance.  From “want my seat” support to “don’t tread on me” attitude.  It is a useful tool and I am getting more accustomed to it.  I’ve only had it four weeks now.

Yes, the fourth identifier, is nothing!  My balance is best during the morning.  So, often i would take my kids to school without Whiteout or my white cane.  I am incognito.  Which is kinda cool, until I fall down because I missed the signpost that I didn’t see while looking around because someone taps me on the shoulder, probably to warn me about the signpost!

Enjoy Life!

 

Response

  1. […] Source: The man with many disabilities… […]

    Like

Leave a comment

From the blog

About the author

Craig MacLean is DeafBlind with ataxia, a rare condition called CAPOS. He & his wife of 22 years have two sons, the oldest of which has CAPOS as well.

Craig uses American Sign Language to communicate. He is an avid writer, friend, Hot Wheel collector and intervenor advocate.

Craig sits on many committees, boards and associations as a DeafBlind rep. He graduated university with a BA in psychology in 2000.